Brain & Mind Institute

A couple of weeks ago Terry and I flew down to Sydney to the Brain and Mind Institute to see an eminent professor of neurology for an opinion on my condition. He examined me and ordered tests be done at the Institute by a neurophysiology technologist. They were interesting. The first was in a darkened room with a computer screen showing black & white squares, like a chessboard. I had lots of coloured wires attached to my head and I had to look at the screen as the program began. The squares changed at different speeds from black to white and back and I had to concentrate on keeping them in focus. The technologist could tell from looking at her monitor screen when my mind was wondering - very creepy, she could virtually read my mind. It was quite exhausting. Each "run" would last about 2 or 3 minutes with one of my eyes covered. After about an hour of that, I had more wires attached to my arms, legs and head and an electric pulse was turned on. That all went for another hour. We then saw the Professor again and he said I didn't have CIDP or MS but he concluded I have spinal chord damage at waist level which will require further investigation with better MRI. It was a bit of a shock to learn I've been treated for 12 months for something I don't have but also relief. I'll now go on to the next step in this medical "journey".